A new app aims to help the millions of people living with long covid

By Rhiannon Williamsarchive: For Complete Post, Click Here…

Visible helps people to manage their symptoms—and could boost scientific understanding of the condition. 

A new app could help people with long covid cope with their condition by giving them a clearer understanding of what helps—and hinders—their health.

People with long covid, defined by the World Health Organization as a post-covid illness lasting two months or more, suffer from symptoms that include headaches, fatigue, weakness, and fever. Some use a practice called pacing, where they balance activity with periods of rest to recover, to keep things under control. If they exert themselves too hard, it can make things worse.

The new app, called Visible, aims to help people manage that process by collecting data every day in order to understand how their symptoms fluctuate. Users measure their heart rate variability (the variation in time between beats) every morning by placing a finger over the phone’s camera for 60 seconds. This measures the pulse by recording small changes in the color of the user’s skin.

International Day of Disabled People

By Jillian Enright: For Complete Post, Click Here…

Inclusion is much more than accommodation

In honour of the International Day of Disabled Persons, I am sharing a collection of my articles related to accessibility and inclusion.

This year’s theme is transformative solutions for inclusive development: the role of innovation in fuelling an accessible and equitable world.

That’s a heady theme, but when you think about it, it makes perfect sense. Innovation is driven by people who saw that the current way of doing things either didn’t work for them, or had significant room for improvement.

People who think outside the box are often more creative and better problem-solvers than traditional thinkers because our minds work differently, therefore we see things from a different perspective.

We can use our unique viewpoints and lived experiences as inspiration for positive change.

Selling suicide

By KEVIN YUILL: For Complete Post, Click Here…

A dystopian Canadian infomercial presents euthanasia as an aspirational lifestyle choice.

La Maison Simons, a fashion house in Canada, has produced an infomercial promoting euthanasia. The advert presents an assisted death as ‘the most beautiful exit’. ‘Dying in a hospital is not what’s natural. That’s not what’s soft. In these kinds of moments, you need softness’, the narrator says.

Selling suicide

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TopicsSCIENCE & TECHWORLD

La Maison Simons, a fashion house in Canada, has produced an infomercial promoting euthanasia. The advert presents an assisted death as ‘the most beautiful exit’. ‘Dying in a hospital is not what’s natural. That’s not what’s soft. In these kinds of moments, you need softness’, the narrator says.

‘Last breaths are sacred’, we are told. Dancers holding paper lanterns accompany an attractive young woman in a wheelchair – the narrator – on an idyllic beach. Bubble wands, dinner and cheesecake with close friends, luminescent whale and jellyfish puppets, singing and being on the ocean. These all feature as time shifts between night and day. The beautiful imagery is accompanied by the kind of inspirational music you usually hear in documentaries about whales. The film ends with a dedication to the young woman at the centre of the story: ‘Jennyfer Hatch – 1985 to October 2022.’ The advert finishes with a small logo of La Maison Simons. It was released one day after Hatch’s death. She was just 37 years old.

Hatch was not terminally ill when she sought euthanasia. She suffered from complications and chronic pain associated with a diagnosis of Ehlers-Danlos syndrome, a group of inherited disorders that affect the connective tissue. Since the video was released, it has emerged that Hatch had struggled to find treatment for her rare condition. And she was not even offered palliative care. After battling for years to access healthcare, she was approved for an assisted death within weeks.

Amid Massive Recall, Philips Reports Issues With Some Repaired Devices

by Jennifer Henderson: For Complete Post, Click Here…

New problems affect repaired ventilators.

As Philips’ subsidiary Philips Respironics continues a sprawling repair and replacement program for 5.5 million breathing machines in the wake of a June 2021 recall mainly due to potential health risks from polyester-based polyurethane (PE-PUR) sound abatement foam, new issues are plaguing some of the repaired devices.

In mid-November, the FDA issued an update to the recall that affected certain continuous positive airway pressure (CPAP) and bilevel positive airway pressure (BiPAP) machines and mechanical ventilators, stating that Philips had informed the agency that reworked Philips Respironics Trilogy ventilators have two new potential issues.

The Advocates

From The Advocates Network: For Complete Post, Click Here…

Join “The Advocates” where Deaf and DeafBlind athletes ***in adaptive sports*** meet and formulate a more complete network. The meetings are open to allies of ASL (including Protactile) in any US state.

Too often we see disabled athletes experiencing deafness in “adaptive spaces,” that are not included and are left totally isolated (*ADA Title II, undue financial hardship). This is a network to support ASL or other means of accessibility for those who have gone without, in whatever capacity possible (*because there is no legal responsibility in certain instances, particularly outside of college). This is a place to make friends, that I hope becomes a collective for advocacy for those who are left out of the conversation.

Allies be they interpreters, people from the community, sports leadership, nonprofits- are all welcome. This is a group for adults.

The bigger of a pool we can create, the more opportunities we’ll have to influence social change and awareness. Culturally Deaf/disabled and DeafBlind members are highest in the hierarchy but do not fully control the group necessarily; we’ll still need contributions from interpreters and those in the adaptive community striving to be good allies, but it will be guided by YOU Deaf and DeafBlind athletes.

In this space disabled Deaf and DeafBlind start and end a conversation, members must respect each other but especially anyone culturally Deaf and disabled including DeafBlind.

This is not a class for hearing people to learn ASL, if you are seeking that class, please conduct your own research. This is a hub for everyone to meet and have productive discussions so the landscape of adaptive sports can change to be more inclusive of Deaf.

A personalised alternative to antidepressants is on the way

By Paul Fitzgerald: For Complete Post, Click Here…

Rachel gets out of bed slowly, very slowly, still troubled by the oppressive weight of depression that she has been carrying for the past six months. This, despite the therapist she sees, and despite the antidepressant pills she has been taking, seemingly forever. However, her treatment today is different. Instead of taking a pill, she puts a cap on her head – a futuristic-looking device containing electrodes that both read her brainwaves and pass a gentle electrical current across her scalp. She boots up her iPad and enjoys the distraction of a game while receiving her treatment: electrical stimulation to her brain that is driven and refined by ongoing recording of her neural activity. At the end, she rates how she is feeling. This and other data from her session, and her previous treatments, is fed into an algorithm that continually refines her ongoing course of treatment.

This might sound far-fetched, but is far from it. Beyond recognising and addressing the importance of social interventions to ameliorate the external conditions that can contribute to mental health problems, the treatment of depression is currently evolving in unexpected ways. This is based on a shift away from thinking about depression as a disorder of ‘chemicals in the brain’ to an understanding that depression is underpinned by changes in electrical activity and communication between brain regions.

We are only just beginning to understand what causes nociplastic pain

By Graham Lawton: For Complete Post, Click Here…

This new kind of pain is poorly understood, as there is often no sign of injury, but as Graham Lawton explains in this personal account, we are finally starting to make inroads.

WE FIRST knew something strange was going on when Clare, my wife, was given intravenous morphine in the emergency room. She had excruciating pain in her ribcage and back, which had started months earlier and was getting worse. At its peak, she described it as feeling like somebody had thrust two swords between her ribs and was prising them apart.

Morphine gave no relief. The doctors were baffled. Clare spent five days undergoing tests. She was eventually discharged with a diagnosis of complex regional pain syndrome and a bag of powerful antidepressants, sleeping pills and anti-anxiety meds.

She didn’t have complex regional pain syndrome. I looked it up and the pain was in the wrong place. But it took another six weeks to find out what she did have, during which time her physical and mental health declined alarmingly. I eventually secured a consultation with the complex pain team at University College Hospital in London, who told us she had nociplastic pain. It was a non-deteriorating condition, we learned, and it was manageable.

OIG Report Shows Failures to Stop Illegal Drugging

From National Consumer Voice: For Complete Post, Click Here…

ngd-Duh! of the Week…

On November 17, 2022, the Office of Inspector General for the U.S. Department of Health and Human Services (OIG) released a report documenting the failure of an over ten-year effort by the Centers for Medicare & Medicaid Services (CMS) to reduce the inappropriate use of psychotropic medications in nursing homes. CMS defines a psychotropic drug as any drug that affects brain activities associated with mental processes and behavior. The OIG report found that despite reducing the use of some inappropriate medications, nursing homes began to use other drugs to improperly sedate and restrain residents.

Disability Justice Weekly: From the Front Lines of Autonomy and Self-Determination

From Change Strategy: For Complete Post, Click Here…

11-24-22

Man No Longer Considering Medically-Assisted Suicide Over Poverty Issues After Outpour Of Support

A man who had applied to receive assisted suicide from the Canadian government is no longer considering the option after the public offered money and support, City News reported Wednesday.

The outlet reported last month that 54-year-old Amir Farsoud was applying for medical assistance in dying (MAID), a process in Canada where an individual who meets certain criteria can receive a substance from a medical professional that will kill them. The Ontario resident was in danger of losing his house, and said he would rather die than be homeless.

“I don’t want to die but I don’t want to be homeless more than I don’t want to die,” Farsoud, who suffers from a debilitating back injury, said in the original October news story.

Michigan Help with Tax Foreclosure

From Ingham County Treasurer’s office: For Complete Post, Click Here (link is to the state program)…

Dear Community Organizations,

We are asking for your assistance to reach individuals in Ingham County who are at risk of losing their property for non-payment of property taxes. The Ingham County Treasurer’s goal is to assist taxpayers throughout the year to achieve their real property tax obligation, and to avoid foreclosure on parcels by taxpayers who demonstrate that financial hardship contributed to their inability to pay. 

This year the State is offering a grant program called the Michigan Homeowner’s Assistance Fund (MIHAF) for homeowners who have experienced a Covid-19 related hardship. This hardship could include time off of work, increased utility costs, increased cost of food and necessities, Covid-19 illness, etc. The MIHAF program offers up to $25,000 in funds for delinquent property taxes, mortgage payments, utilities, land contract payments, homeowner’s insurance, and condo association fees.

Together with Capital Area Housing Partnership (CAHP), we are promoting this program and are holding an application assistance event on December 5th in Lansing at the Neighborhood Empowerment Center. Further information about this event is provided in the attached flyer. We are trying to reach as many community members as possible, so everyone who qualifies for this program knows about it. If you could share this flyer and information with your members and clients, we would greatly appreciate it. If you have any questions please give me a call or send me an email. Thank you for your assistance. Have a wonderful Thanksgiving!

Sincerely,

Francesca Gucciardo

Francesca Gucciardo

Tax Forfeiture/Foreclosure Coordinator

Foreclosure Prevention

Ingham County Treasurer’s Office

517-676-7304

fgucciardo@ingham.org