Researchers looking for long COVID symptoms find only 7

By Frank Diamond: For Complete Post, Click Here…

The Centers for Disease Control and Prevention’s tally of 19 possible long COVID symptoms comes with the caveat that it’s “not a comprehensive list.”

Yale Medicine counts 22 symptoms, while the Mayo Clinic lists 10. And Great Britain’s National Health Service (NHS) puts the number at 16.

These lists can be made even longer. For instance, the NHS has “high temperature, cough, headaches, sore throat and changes to sense of smell or taste” as one symptom. Mayo lists “difficulty thinking or concentrating, headache, sleep problems, dizziness when you stand, pins-and-needles feeling, loss of smell or taste and depression or anxiety” as one symptom.

Narrowing down exactly what symptoms point to long COVID would be a start, and researchers at the University of Missouri (MU) think they’ve done just that by slimming the field of long COVID symptoms down to just seven: fast-beating heart, hair loss, fatigue, chest pain, shortness of breath, joint pain and obesity.

Their study in Open Forum Infectious Diseases said that “understanding the population and subgroup risks for long COVID associated with outcomes, including lingering and chronic never-before-experienced symptoms and new medical diagnoses such as those reported here, is important for clinicians and researchers so that clinical guidelines for treatments and symptom management can be more appropriately developed for the growing number of adults affected by COVID-19.”

MDHHS outlines improvements in protecting children in state’s care

From MDHHS: For Complete Post, Click Here…

The Michigan Department of Health and Human Services (MDHHS) today shared an update on the transformation it has made to the child welfare system that has resulted in improved safety for children and families since the inception of a federal lawsuit.

MDHHS appeared virtually in U.S. District Court for the Eastern District of Michigan for the latest update, which has been tracking progress since a 2008 settlement agreement following a 2006 lawsuit. “I am delighted with the progress that has been made since we adopted the (corrective action plan) last April,” said Judge Nancy G. Edmunds. “I think the state has taken huge steps under (MDHHS) Director (Elizabeth) Hertel. Congratulations are in order for sure,” Judge Edmunds said, adding that more work needs to be done to address issues mentioned by federal monitors.

Specifically, the department emphasized in court how child safety has improved through the increased monitoring of and investment in congregate care facilities where foster and juvenile justice youth are placed. The update came nine months after MDHHS and federal court monitors unveiled new strategies to target 14 areas in the child welfare and juvenile justice system as part of a corrective action plan. “We maintain our steadfast focus on ensuring the safety of all youth receiving treatment in congregate care facilities through intensive improvements in oversight of the facilities where our children are placed,” Hertel said. “I am proud of the work we do and the improvements we have made as we continue to work toward excellence in our child welfare system.” Recent MDHHS actions that are producing results include:

Youth lead anti-corruption talks on disability

From EDYN: For Complete Post, Click Here…

The 1st episode of the Youth Lead Anti-corruption Talks series named “Inclusion and leadership of youth with disabilities to contribute to the achievement of SDG16″ took place virtually, on December the 9th 2022, and was dedicated to the Human Rights Week and the International Day of the Rights of Persons with Disabilities celebrated on December the 3rd. These talks are being organized by the Youth Lead Board of the UNODC’s GRACE initiative. Each of these talks is dedicated to a certain UN observance day and thus focuses on a given topic. For instance, the first edition was focused on disability inclusion and was prepared by Esma Gumberidze and Sylvain Obedi from the Youth Lead Board.

California’s power outages are a life-and-death issue

By Alice Wong: For Complete Post, Click Here…

ngd-This is a critical issue in Michigan as well. Great problems that laste dfor days to weeks happened in the 2013 ice storm…

A perspective on the impacts of storms for people with disabilities.

The terms atmospheric river and bomb cyclone were not in my vocabulary until recently. During the first two weeks of 2023, however, the San Francisco Bay Area was deluged with a series of storms. I am a disabled person who depends on power to live. When I came home after four weeks in the ICU last summer, I was tethered to a feeding machine that pumps food into my stomach, as well as to a ventilator that’s attached to a hole in my throat, among numerous other devices. The stakes for potential harm during a power outage have exponentially increased. My anxiety, vulnerability and fear are real.

Jan. 3, 2023, 10:44 p.m.: Texted my caregivers on what to do if a power outage happens while I am in bed tomorrow night. Air mattress will deflate, and I will immediately need to be transferred into my wheelchair. I will need to use my backup electric batteries for medical devices such as my suction machine, since I need to suction hourly every day.

Jan. 4, 10 a.m.: Mentally calculating how much battery life some of my machines need before needing to use my backup electric battery. My other devices do not have a built-in battery.

1 p.m.: Bookmarked the link to Pacific Gas & Electric’s (PG&E) Outage Center, so I can look up all the outages by location and report one if it happens in my neighborhood.

1:30 p.m.: Asked my father to make sure my backup electric batteries are fully charged.

2 p.m.: Let my morning caregiver leave her shift early so that she can get home safely before the brunt of the storm arrives. Did not hydrate today, because my nighttime caregiver will not arrive until 9 p.m. Worried for her, and worried for me. I hope I don’t get a full bladder.

3:02 p.m.: Tweeting information about the storm. Noticing that many weather-related Tweets do not have alt text in graphics and captions in videos that contain vital information about the storm, evacuations and road closures.

3:30 p.m.: Watching the news and scrolling Twitter. My father, who thinks I’m being an alarmist, said, “The news always exaggerates the dangers.” After living with me for decades, he still doesn’t understand.

6:01 p.m.: Pre-emptively charging some of my devices, topping them up with power tonight, just in case.

6:19 p.m.Uh-oh. My bladder feels a little full. Let’s see if I can hold on until 9-ish when my caregiver arrives. I hope she makes it.

And Much More…

Frequent Use of Antibiotics May Heighten Inflammatory Bowel Disease Risk in Adults Over 40

From Neuroscience News: For Complete Post, Click Here…

Summary: Adult exposure to antibiotics appears to be linked to an increased risk of developing an inflammatory bowel disorder, including Crohn’s disease and ulcerative colitis. The risk appears to be cumulative, greatest around two years after use, and for antibiotics that target gut infections.

Source: BMJ

Frequent use of antibiotics may heighten the risk of inflammatory bowel disease—Crohn’s disease and ulcerative colitis—among adults over 40, suggests research published online in the journal Gut.

The risk seems to be cumulative and greatest 1-2 years after use and for those antibiotics targeting gut infections, the findings indicate.

It took decades: Now there’s a photo for each name on Vietnam wall

By Anna Mulrine Grobe: For Complete Post, Click Here…

Volunteers have now tracked down at least one photo for every one of the more than 58,000 U.S. military service members who died in the Vietnam War – for an online Wall of Faces project that took more than two decades to complete.

The goal was to help a new generation of Americans grapple with sacrifice and inspire them to reflect, perhaps, on “why we have a wall” with names inscribed on it, say organizers from the Vietnam Veterans Memorial Fund (VVMF), the nonprofit that spearheaded the digital project as well as the national monument on which all these names are engraved.

More than half of the visitors to the memorial in Washington, D.C., today weren’t alive when it was commissioned in 1982, they add.

Assistive Technology For Daily Living

From MATP: For Complete Post, Click Here…

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Psychedelics and Veterans’ Mental Health

by Bryce Pardo, Beau Kilmer, Rajeev Ramchand, Carrie M. Farmer: For Complete Post, Click Here…

Over the past 20 years, there has been a resurgence of interest in the use of compounds often referred to as psychedelics to address such mental health conditions as depression, anxiety, posttraumatic stress disorder, and substance use disorders. Public sentiment on psychedelic therapy is starting to shift as well. Multiple jurisdictions, including around a dozen cities, three states, and the District of Columbia, have already relaxed laws or policies related to these substances. Some companies are making major investments in psychedelic research, acquiring patents for future therapies, and shaping a new public discussion around psychedelics.

Veterans represent a sizable segment of mental health care consumers in the United States, and the U.S. Department of Veterans Affairs (VA) — the largest provider of mental health care to veterans — has already conducted research into psychedelic treatments. Given the rapidly evolving legal and policy landscape surrounding the use and supply of psychedelics, the federal government must consider how best to support veterans and their health care providers. If VA is not working on a directive to provide guidance to its patients and clinicians, it would be prudent to start these discussions now.

Apple Silently Launched A New Sleep Feature With NightWare That Can Actually Stop Nightmares

By Jano le Roux: For Complete Post, Click Here…

Why is nobody talking about this?

Apple just launched a magical new feature.

  • It can detect nightmares.
  • It can prevent nightmares.

It’s called NightWare.

And absolutely nobody in the tech community is talking about it. This is one of the most incredible innovations we’ve seen.

It actually helps solve a serious problem that has pestered humanity for millennia, unlike a new way to unlock your phone.

So how exactly does Apple actually stop nightmares?

Although the underlying data is not fully clear yet, Apple says it works like this:

With the help of the Apple Watch and an iPhone, the digital therapeutic system NightWare can stop nightmares brought on by PTSD.

NightWare detects nightmares using data from the heart rate sensor, accelerometer, and gyroscope on the Apple Watch.

Once a nightmare is detected, the device interrupts the nightmare with haptic feedback, sending out soft pulses that gradually get stronger until the user is awakened from the nightmare but not from sleep.

Can anyone with an Apple Watch use it?

Not yet. It is the first and only digital therapy created particularly to treat nightmares that have been approved by the FDA, and it is only available via prescription.

So no, this is not available for just anyone — yet.

It is for people with severe PTSD.

Thoughts On Our Third Pandemic Holidays

By Andrew Pulrang: For Complete Post, Click Here…

The holidays are a good time — the third time now — for disabled and chronically ill people to take stock of the state of the COVID-19 pandemic.

The end of the year is a convenient milestone. It’s also the time of year when we are most likely to be pushed into close interactions with others who may or may not view pandemic risks the way we do.

It seems like many if not most of the risks are at least somewhat reduced for most people at this point. But that arguably makes these holidays more complicated, uncertain, and therefore physically and emotionally risky for at least some people with disabilities and chronic illnesses.

Death and hospitalization rates overall have been falling in most places for a good long time. But they are on the rise again, and some areas of the U.S. are in bad shape. Infection rates are rising again too. In at least some places, like where I live, even when rates are low the danger is still significant because hospitals are full of patients with COVID, flu, and other viral infections. And new variants keep emerging. Some of them may turn out to be no worse than what we’ve already seen. But they can always end up being much worse, nightmare variants.