NASH Patients Are Entitled to a ‘Bill of Rights’

by Molly Walker: For Complete Post, click here…

Advocacy group encourages a “partnership” between clinicians and patients.

Patients with non-alcoholic steatohepatitis (NASH) have the right to expect certain multidisciplinary treatments that clinicians should be aware of, a patient advocacy group said.

Warren Hall, MDiv, of the nonprofit American Liver Foundation, unveiled this “NASH Patient Bill of Rights” dressed as George Washington, complete with a jacket, white wig, and tri-corner hat in a talk at the virtual American Association for the Study of Liver Diseases annual meeting.

Keeping in character, he read out these rights on a scroll, which included that patients:

  • Receive the best care and treatment possible
  • Take as much time as necessary with your healthcare team
  • Ask your doctor for a specialist referral or second opinion
  • Partner with your doctor to create a multidisciplinary team
  • Expect ongoing coordination of your care

These rights, among others, were the result of a NASH roundtable last September, which consisted of patients, providers, and endocrinologists.

Hall shared an anecdote about a patient who said they got more information from their patient support group on Facebook than from their own physician. He also discussed the stigma associated with liver disease — particularly the assumption that anyone with the disease drinks too much alcohol.

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